4th day after chemo

My side effect routine is now like clockwork: the day I have chemotherapy, within an hour fatigue takes over for a couple of hours. Sometime the next day for an hour here or there... but the full blown side effect tide normally kicks in on Sunday, the fourth day after chemo.

This Sunday I woke up with joint pain, headache and general fatigue. But knowing the problem is half the battle -- so a day in bed with Turkish serial dramas, warm tea, and cats within reach did the trick.

Today, Monday, I am off to a regular day. As it is a holiday, no work or school, we decided to enjoy the first real snow this year at the DeCordova Sculpture Park! 

Funny: my bathroom shenanigans

While in our beautiful alternative universe of Providence, RI , we went to some famous local Chinese buffet restaurant for a feast. My motto lately -- eat as much as I can, because after the next chemo I might not be able to.

As I am so new to these cancer treatments and side effects, of course I was in my regular easy traveling garb -- jeans and sweatshirt -- and thought nothing of it. 

At some point I needed to use the bathroom and boy, was I in for a rude awakening. Because of the arthritis pains, all of a sudden buttons and zippers felt like they required the dexterity of a contortionist. With my inability to bend my fingers, it turned out I couldn't unbutton or even unzip my pants, nor dial the phone to quietly call George for help.  

So here was the scene: I opened the door and semi-quietly, if there is such a term, called for George. Then we spent a long time locked in the bathroom with some noises and discussion on how to get me first out of, and then back into, my pants. Alas, probably 10 minutes later when we left the bathroom most of the restaurant stuff was along the wall whispering in Chinese... 

We decided not to disabuse them of whatever funny notions they fantasized about regarding our bathroom escapades. Who knows, maybe we were the talk of the town now, so I'll just chalk it up as a win for the day. But note to self: next time, wear pants that you can actually take off by yourself.

To get away

Now that I feel the side effects somewhat acutely, and they are not going to get any lighter (on the contrary chemo is cumulative) I offered to run away for two days to RI with George before my next chemo. I couldn't use my arms much because of the arthritic pain, but I reasoned with George that I can just keep them in my pockets and he can do the rest... and it is much better to walk around and take my mind off it vs sitting at home.

Thank God, Gwen is back from college on a winter break and is babysitting Max for two days. 

It is an hour and a half ride, but feels like a different world, away from everything. And it is nice to relax and enjoy this alternative reality, walking down Benefit St in Providence or the Breakers mansion in Newport. 

It was a really needed respite for George, who tends to lock up all his worries, to get away from it all and recharge. 

And two beautiful days with my husband were WONDERFUL!

4th day after chemo

Sunday. It has been 4 days since my first chemo --- and the first day or two I barely had
any side effects, except the expected fatigue and inability to fall asleep at night. 

Sunday morning I woke up unable to bend my fingers, feeling like the Edward Scissorhands character. Even after an hour wearing heater gloves to ease it a bit, the horrible arthritic inflammation was here to stay. Suddenly you realize how little you can do with the unbending fingers.

Beyond that, it was the day as usual -- even managed to finish the rabbit papier-mâché for the upcoming year of the rabbit (mainly drawing eyes) and had dinner and a movie at a friend's house!